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Discussion in 'Educational Articles & Links' started by elliesmummy, Oct 9, 2008.
It is scary.. And it's also scary that we know so little about these things.
Thanks for posting,
Just wanted to let you know if you wanna read a bit more Charlotte and Mira's story is in the daily mail today, and Charlotte will be on this morning tomorrow x
Hi, came across this thread today and wanted to share my story.
My little boy dies of the cold sore virus 6 weeks ago. I have had cold sores as a teenager but obviously does not make the baby immune.
Dad had a cold sore a few weeks before he died. We were unaware that this is a life threatening situation to our son until it is too late.
My husband took all the precautions he could while having a cold sore, but obviously was not enough.
I am devastated by this, our little boy was born healthy and happy and was one day off being 10 weeks old. He had no symptoms of being ill apart from a high temp.
The visus attacked his liver and casued liver failure.
You are right in saying that people dont know about this. I read every book to prepare me for pregnancy and birth and never came across it. I was so proud of how much I knew about babies even though we had not had one before. And now look at me. No baby to prove it and we lost him to something we did not even now was a threat.
People need to know about this so no one has to go through the pain and suffering that my husband and I are going through now.
Hopefully forums like this will help raise awareness.
This is so sad, i am sorry to hear of your story Kimbent and of Charlotte's.
I studied Immunology and Virology at university and we spent quite a lot of time on herpesviruses and I knew they could be lethal to people with reduced immunity i.e. cancer and transplant patients but I didn't know about the effect on babies (although seems an obvious connection now I've read this thread).
How can it be avoided? I don't think it is easy to prevent transmission as proved above, are there treatments that can be administered if diagnosed early enough?
Kimbent I am so sorry about your little boy, if you want to chat I am here. Also have you found SANDS support forum yet, it is a great sorce of support for me, although I know it is not for every one.
Yes you can get medication if found early enough, anti viral I believe.
As for Charlotte she has been interviewed for an American radio station, she is now spreading the information world wide.
It is so sad, the more awareness the better, so sorry to hear about your little boy x x
Bloody hell, poor woman. You never know do you
I am from Canada, About six months ago, I had my first child, when he was eleven days old, he passed away from hsv1. It was and is absolutely devastating. Never before had I even heard anything about this virus harming a newborn, and now it is too late. People need to be informed in order for this not to happen. I just wish I would have found out in time to save my son.
So sorry to hear about your son AngelinHeaven.
once her body had fought the virus would the antibodies then be passed on through breastmilk? did she breastfeed? Could breastfeeding have possibly saved the baby? (assuming she didnt breastfeed).